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Our Special Interest Group

The Lymphoma Australia Specialist Interest Group for nurses has been developed for anyone working in lymphoma care to keep professionals who are like minded connected around Australia.
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We can come to you

If your workplace could benefit from having a visit by a Lymphoma Care Nurse please contact us for further details.

Please let us know if you have any questions and we look forward to connecting with you all.

Email: nurse@lymphoma.org.au

Group Objectives

The Specialist Interest Group has the following objectives:

  • To provide peer support and an environment in which nurses can network, exchange knowledge, and seek information to strive for best practice in their workplace
  • To facilitate professional development within the group by organising guest speakers, seminars and workshops in your local areas for nurses
  • Provide ongoing support and information for patients across Australia
  • Conduct meetings at annual conferences where the group can meet face to face
  • Provide national updates on current research and advocacy for medicines for our lymphoma patients
  • Alerts on new and updated information including clinical trials exclusive e-newsletters for members

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Lymphoma Australia is the only incorporated charity in Australia dedicated to solely providing education, support, awareness and advocacy initiatives for Australians touched by lymphoma and chronic lymphocytic leukemia (CLL).
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Patient Support Hotline

General Enquiries

Please note: Lymphoma Australia staff are only able to reply to emails sent in English language.

For people living in Australia, we can offer a phone translation service. Have your nurse or English speaking relative call us to arrange this.

Useful Definitions

  • Refractory: This means the lymphoma does not get better with treatment. The treatment didn’t work as hoped.
  • Relapsed: This means the lymphoma came back after being gone for a while after treatment.
  • 2nd line treatment: This is the second treatment you get if the first one didn’t work (refractory) or if the lymphoma comes back (relapse).
  • 3rd line treatment: This is the third treatment you get if the second one didn’t work or the lymphoma comes back again.
  • Approved: Available in Australia and listed by the Therapeutics Goods Administration (TGA).
  • Funded: Costs are covered for Australian citizens. This means if you have a Medicare card, you shouldn’t have to pay for the treatment.[WO7]

You need healthy T-cells to make CAR T-cells. For this reason, CAR T-cell therapy cannot be used if you have a T-cell lymphoma – yet.

For more information on CAR T-cells and T-cell lymphoma click here. 

Special Note: Although your T-cells are removed from your blood for CAR T-cell therapy, most of our T-cells live outside of our blood – in our lymph nodes, thymus, spleen and other organs.