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Available Lymphoma Australia Resources

Patient Diary – Keeping track of my Lymphoma and CLL
Understanding Non-Hodgkin’s Lymphoma (NHL)
Understanding Hodgkin’s Lymphoma (HL)
Living with CLL – CLL patients only
Nurse Support Line

For lymphoma sub-type fact sheets, please visit this page to download in PDF.

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If you are a patient, and would like to disclose your subtype, this will help us tailor the materials we send to you

Resources

Patient Diary – Keeping track of my Lymphoma and CLL

Understanding Non-Hodgkin’s Lymphoma (NHL)

Understanding Hodgkin’s Lymphoma (HL)

Living with CLL – CLL patients only

Nurse Support Line

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Patient Support Hotline

General Enquiries

Please note: Lymphoma Australia staff are only able to reply to emails sent in English language.

For people living in Australia, we can offer a phone translation service. Have your nurse or English speaking relative call us to arrange this.

Useful Definitions

Refractory: This means the lymphoma does not get better with treatment. The treatment didn’t work as hoped.
Relapsed: This means the lymphoma came back after being gone for a while after treatment.
2nd line treatment: This is the second treatment you get if the first one didn’t work (refractory) or if the lymphoma comes back (relapse).
3rd line treatment: This is the third treatment you get if the second one didn’t work or the lymphoma comes back again.
Approved: Available in Australia and listed by the Therapeutics Goods Administration (TGA).
Funded: Costs are covered for Australian citizens. This means if you have a Medicare card, you shouldn’t have to pay for the treatment.[WO7]

You need healthy T-cells to make CAR T-cells. For this reason, CAR T-cell therapy cannot be used if you have a T-cell lymphoma – yet.

For more information on CAR T-cells and T-cell lymphoma click here.

Special Note: Although your T-cells are removed from your blood for CAR T-cell therapy, most of our T-cells live outside of our blood – in our lymph nodes, thymus, spleen and other organs.