Factsheets & Booklets

 

We know that being diagnosed with, and living with and after lymphoma can be stressful, and many people look to find more information than what is provided by their doctors. At Lymphoma Australia we’ve developed a variety of factsheets and booklets to help you understand your subtype of lymphoma or CLL, treatment options and supportive care. 

You can download and print any of the resources on this page yourself, or click the button below to order hard copies and we will send them to you through Australia Post. You can even listen to the factsheets being read if you would prefer to hear rather than read the information. Just click on the little speaker icon next to the factsheet you what to hear about.

On this page:

Factsheets & Booklets

Click on the relevant headings below to see our range of factsheets and booklets. You can read these on the computer and download them to save for later, print them, listen to them, or order hardcopies by contacting our support team on 1800 359 081 or clicking the button above.

General Lymphoma information & booklets

Cutaneous lymphoma – Including B-cell and T-cell lymphoma

Other resources

Didn't find what you were looking for?

We are updating our resources on a regular basis. If you haven’t found what you are looking for, you can email our nurses on nurse@lymphoma.org.au or call them on 1800 953 081, Monday to Friday 9am-4:30pm AEST (Sydney time).

Support and information

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Please note: Lymphoma Australia staff are only able to reply to emails sent in English language.

For people living in Australia, we can offer a phone translation service. Have your nurse or English speaking relative call us to arrange this.

Useful Definitions

  • Refractory: This means the lymphoma does not get better with treatment. The treatment didn’t work as hoped.
  • Relapsed: This means the lymphoma came back after being gone for a while after treatment.
  • 2nd line treatment: This is the second treatment you get if the first one didn’t work (refractory) or if the lymphoma comes back (relapse).
  • 3rd line treatment: This is the third treatment you get if the second one didn’t work or the lymphoma comes back again.
  • Approved: Available in Australia and listed by the Therapeutics Goods Administration (TGA).
  • Funded: Costs are covered for Australian citizens. This means if you have a Medicare card, you shouldn’t have to pay for the treatment.[WO7]

You need healthy T-cells to make CAR T-cells. For this reason, CAR T-cell therapy cannot be used if you have a T-cell lymphoma – yet.

For more information on CAR T-cells and T-cell lymphoma click here. 

Special Note: Although your T-cells are removed from your blood for CAR T-cell therapy, most of our T-cells live outside of our blood – in our lymph nodes, thymus, spleen and other organs.